Specific Cancers, Problems, Treatments, and Situations
CancerGuide is more about how to research your options than it is about giving
you specific information on your cancer - I couldn't hope to maintain that kind
of information. So this article is links to good sites I've found about specific
cancers and situations. I also have a few articles with pointers to a bit more.
The big exception is my extensive kidney cancer
section where I review the treatment for the cancer I had in depth.
Steve's Information on Specific Cancers, Situations, and Treatments
Other Sites for Information on Specific Cancers
This is a highly selected list of websites devoted to specific cancers with in
depth original information. Because I look for sites which go beyond the
standard bland very basic patient information some very common cancers aren't
represented here, simply because I haven't found an appropriate site.
Incidentally, I've found the best sites are very often patient-created sites
like this one.
Male and Female Reproductive System Cancers
Common Solid Tumors
- Alliance for Lung Cancer Advocacy, Support
Some excellent basic information - be sure to check out their Lung
- Lung Cancer On-Line
While this page by a librarian who survived lung cancer contains little
original material, it is an extremely well organized and annotated set
- With Every Breath: A Lung
Cancer Guidebook, this free online book was written by Dr. Tina M. St. John
whose husband died of lung cancer a few years ago. It provides a detailed
introduction to standard treatments for both small cell and non-small cell lung
- Pancreatica is a non-commercial
and unbiased site dedicated to providing the latest information on pancreatic
cancer. One incredible feature is their pancreatic cancer clinical trials
database which has many, many trials you won't find in other databases.
[Reviewed Feb 02]
- Information on Pancreatic
Cancer at Johns Hopkins
University Medical Center.
- The Colon Cancer Alliance
- The Colon Cancer Information
Library by Medicine On Line
- The Liver Cancer Network
This page by a doctor specializing in treating liver cancer covers
treatments for both primary liver cancer and liver metastases.
- Bladder Cancer 'Web Cafe' An excellent
patient created site, highly recommended.
- American Bladder Cancer Society A patient created site. [Reviewed March 11, PF]
- The Melanoma Patient's Information Page
has many unique tools, including staging tools, a "glossifier", and more.
[Reviewed Feb 02]
- Melanoma International Foundation provides information on melanoma and its prevention, detection, and treatment. [Reviewed Jan 07, PF]
- Yttrium 90 Microspheres Education and Support provides information on treatment for liver cancer or metastases to the liver. When the liver is inoperable and there are few other choices, either Sir-Spheres or Theraspheres may be a possibility. The organization offers survivors a toll free survivor line, weekly telegroups, a monthly newsletter, list-serv support, and an informative web-site. [Reviewed July 07, PF]
Head and Neck Cancer
Head and neck cancer includes cancer of any part of the throat, layrnx, tonsil,
sinus, tongue, lips, salivary glands, or other oral cavity, but does not
include superficial skin cancers or brain tumors.
- SPOHNC, Support for People with Oral,
Head and Neck Cancer is strong in patient networking. Their web site doesn't
have much information on it. I advise calling them. [Reviewed Dec 01]
- Head and Neck Cancer Community
is primarily a professional site. You'll find unvarnished technical
information in the form of clinical practice guidelines. [Reviewed Dec 01]
Lymphomas, Leukemias, and Malignant Marrow or Blood Disorders
More Common Hematological Cancers
- International Myeloma Foundation Home
- Multiple Myeloma Research
- The Lymphoma Information Network By
Mike Barela a survivor of advanced Hodgkin's Disease.
- Grannybarb and Art's Leukemia Links
Created by a group of patients, this gem has much original
information on Non-Hodgkin's Lymphoma.
Covers Chronic Lymphocytic Leukemia and is one of the most amazing patient created
sites I've ever seen.
Myleogenous Leukemia Page by Medicine
Rarer Hematological Cancers
- International Waldenstrom's Macroglobulinemia
Covers five rare blood diseases: Polycythemia Vera,
Essential Thrombocythemia, Agnogenic Myeloid Metaplasia,
Myelofibrosis, Myelodysplastic Syndrome, and Chronic Myelogenous Leukemia.
Be sure to check their excellent
- Aplastic Anemia & MDS International
Covers myeloproliferative disorders as well as aplastic
anemia and one other hematological disorder. Information is available in
several languages and they also have one-on-one support. Overall it looks like
many of their best services are by phone so look over the site, then give 'em a
- Mycosis Fungoides Foundation
patient created site covers T-Cell Lymphomas including Mycosis Fungoides,
Cutaneous T-Cell Lymphoma, and Sezary syndrome.
- Primary Bone Non-Hodgkins Lymphoma - The Furry Monkey
This patient-authored web site covers all aspects of this rare type of lymphoma. [review 4/07 PF]
- Pediatric Oncology Resource
Center (childhood cancers)
- Patient Centered
Guides (childhood cancers)
- CureSearch (childhood cancers)
- The Carcinoid Cancer
- Caring for Carcinoid Foundation (CFCF)
The CFCF is a non-profit dedicated to providing a cure for carcinoid cancer. The web site provides quite a bit of information on disease and treatment issues, mostly in the form of links to other web sites. (Reviewed PF 1/07)
- PMP Pals (rare intestinal cancers)
Covers Pseudomyxoma Peritonei, cancer of the appendix, carcinoid of the
appendix or bowel, and other rare intestinal cancers. Information on the site
is mostly links to other sites. Useful services include referral to expert
doctors and introductions to patients with the same diagnosis but require a $50
An incredible and humane guide to this rare cancer by a group of patients.
- The Life Raft Raft Group (GIST)
In addition to providing information on the latest research on
Gastrointestinal Stromal Tumor (GIST), this incredible group is actually doing
research which is changing the treatment of this rare cancer!
- Anal Cancer Help The Anal Cancer Help website is authored by a patient. She provides candid descriptions of her cancer and helps for coping, as well as reading lists, links to support groups, resources, and more. In her words: "It is less frightening if you do not have to go down this road alone." A great site, highly recommended. [PF review 2/12]
Treatment Information by Roger G. Worthington, PC (A law firm)
Most mesothelioma is caused by
asbestos and this site is put up by lawyers who make their living suing
asbestos companies - obviously they might be interested in having you as a
client. Despite any commercial motivation, the site has an impressive
amount of well maintained treatment information on this relatively rare
cancer and is a "must see" for anyone dealing with mesothielioma.
- Adenoid Cystic Carcinoma
Adenoid Cystic Carcinoma is a rare form of salivary
- The Eye Cancer Network
Information on all types of eye cancer from a specialist in the field -
a unique and wonderful feature is a list of eye cancer specialists
- The Sarcoma Alliance. The Sarcoma Alliance is a volunteer organization of sarcoma survivors, their families, friends, and supporters. They work to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education and support. They also work to provide resources for the sarcoma patient's family and support network. Services are free of charge. Members of ACOR lists helped found this alliance. [PF review 2/09]
Links for Specific Problems Rather than Specific Cancers
- Lymphedema is not a cancer, but can be a complication from cancer
surgery. If you have it, check the National Lymphedema Network home page.
- Cancer pain can usually be controlled but often isn't. For specific
information on controlling cancer pain see
Didn't Find Your Cancer Here?
If your cancer is not listed here (or even if it is) you can gather valuable
basic information your specific cancer and about cancer in general by taking CancerGuide's Tour of Essential Cancer Information
This CancerGuide Page By
Steve Dunn. © Steve Dunn
Page Created: 1995,
Last Updated: February, 2012.